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User-Driven Healthcare and Narrative Medicine

Book Description

E-healthcare, Health 2.0, and user driven healthcare are steadily increasing in popularity among patients and healthcare professionals.  In spite of this, there is surprisingly little written about the wealth of information available on the Web created by individual healthcare users, in terms of their experiential disease narratives, potential learning, and improved healthcare results.User-Driven Healthcare and Narrative Medicine: Utilizing Collaborative Social Networks and Technologies fills this gap by exploring various individual user driven strategies that move towards solving multiple clinical system problems in healthcare, utilizing real life examples. Documenting individual concrete experiences, reflective observations, abstract conceptualizations and particular instances of active experimentation, this text is a valuable resource not only for the healthcare academic community, but patients interested in social networking to improve their own healthcare outcomes.

Table of Contents

  1. Cover
  2. Title Page
  3. Copyright Page
  4. Editorial Advisory Board and List of Reviewers
    1. Editorial Advisory Board
    2. List of Reviewers
  5. Forward
    1. Conversations
  6. Preface
  7. Acknowledgment
  8. Section 1:
    1. Chapter 1: A Healing Journey with a Thousand Echoes
      1. Abstract
      2. INTRODUCTION
      3. THE PHYSICIAN/PATIENT COMMUNICATION GAP
      4. MEDICAL EVIDENCE
      5. COMPLEMENTARY AND ALTERNATIVE TREATMENTS
      6. THE INFLUENCE OF TECHNOLOGY
      7. APPENDIX A
      8. APPENDIX B
    2. Chapter 2: Hematology
      1. Abstract
      2. INTRODUCTION
      3. RED BLOOD CELL DISORDERS
      4. WHITE BLOOD CELL DISORDERS
      5. PLATELET DISORDERS
      6. CONCLUSION
    3. Chapter 3: Stomodeum to Proctodeum
      1. Abstract
      2. INTRODUCTION
      3. PROCTODEUM:
    4. Chapter 4: Physician and Patient perspectives
      1. Abstract
      2. INTRODUCTION
      3. PERSONAL EXPERIENCES OF AUTISM
      4. THE EVOLUTION OF THE TERM AUTISTIC SPECTRUM DISORDER
      5. LIFE BEFORE DIAGNOSIS
      6. COMMUNICATION OF DIAGNOSIS
      7. LIVING WITH A DIAGNOSIS
      8. PETER’S STORY
      9. THE IMPACT OF DIAGNOSIS ON PEOPLE ON THE AUTISM SPECTRUM
      10. MANY PERSPECTIVES BROUGHT TOGETHER
      11. CONCLUSION
      12. LEARNING POINTS
    5. Chapter 5: Critical Illness and the Emergency Room
      1. Abstract
      2. INTRODUCTION
      3. CASE ONE
      4. CASE TWO
      5. CASE THREE
    6. Chapter 6: Patient Journey Record Systems (PaJR)
      1. Abstract
      2. THE PATIENT'S JOURNEY
      3. THE JOURNEYS
      4. THE PATIENT JOURNEY RECORD (PAJR) CONCEPTUAL FRAMEWORK
      5. CONCLUSION
    7. Chapter 7: Patient Journey Record Systems (PaJR) for Preventing Ambulatory Care Sensitive Conditions
      1. Abstract
      2. INTRODUCTION
      3. TRANSLATING NEEDS, IDEAS AND KNOWLEDGE FOR AN INFORMATION TECHNOLOGY-BASED SOLUTION
      4. DISCUSSION
      5. CONCLUSION
    8. Chapter 8: Multiple Paths in Health Care
      1. Abstract
      2. INTRODUCTION
    9. Chapter 9: Medical Student Perspectives
      1. Abstract
      2. INTRODUCTION
    10. Chapter 10: Stories of Illness and Healthcare from a Physician Perspective
      1. Abstract
      2. INTRODUCTION
      3. CONCLUSION
    11. Chapter 11: Lived Experiences In Cardiothoracic Surgery
      1. Abstract
      2. INTRODUCTION
      3. PART 3
      4. CONCLUSION
    12. Chapter 12: Smaller Heroes I Didn’t See
      1. Abstract
      2. INTRODUCTION
    13. Chapter 13: Practical Pointers in Medicine Over Seven Decades
      1. Abstract
      2. INTRODUCTION
    14. Chapter 14: Learning Medicine
      1. Abstract
    15. Chapter 15: Descriptive Statistics with a Purpose
      1. Abstract
      2. WHAT IS A STATISTIC?
      3. WHO NEEDS STATISTICS ABOUT SEX WORKERS AND WHY?
      4. LOOKING AT THE DATA
      5. EVIDENCE BASED-POLICY?
      6. FINDING SUBGROUPS
      7. WHAT HAVE WE LEARNED SO FAR?
      8. A HAPPY END?
    16. Chapter 16: Medical Humanities
      1. Abstract
      2. INTRODUCTION
      3. WHAT ARE THE MEDICAL HUMANITIES?
      4. WHY TEACH MEDICAL HUMANITIES TO MEDICAL STUDENTS?
      5. MY EXPERIENCES WITH THE MEDICAL HUMANITIES
      6. CHALLENGES FOR MEDICAL HUMANITIES IN DEVELOPING COUNTRIES
      7. SUMMARY
      8. CONCLUSION
  9. Section 2:
    1. Chapter 17: The User Driven Learning Environment
      1. Abstract
      2. INTRODUCTION
      3. USER DRIVEN APPROACH TO HUMAN TROUBLESHOOTING (CLINICAL PROBLEM SOLVING)
      4. APPROACH TO DISEASE CAUSALITY AND ROLE OF CLINICAL DECISION SUPPORT SYSTEMS
      5. FUTURE DIRECTIONS IN USER DRIVEN LEARNING AND HEALTH CARE:
      6. CONCLUSION
    2. Chapter 18: User Driven Learning in Mathematics
      1. Abstract
      2. INTRODUCTION
      3. SYSTEMS THAT FACILITATE SELF DIRECTED LEARNING
      4. MULTIPLE INTELLIGENCES (M.I)
      5. MANAGEMENT SYSTEMS IN CLASS
    3. Chapter 19: A User Driven Learning Environment in Botany
      1. Abstract
      2. INTRODUCTION
      3. USER NARRATIVES ON THE PERSONAL NEED FOR LEARNING ON A TOPIC
      4. SETTING UP A FORUM FOR USER DRIVEN LEARNING: INITIAL PHASES
      5. CHANGING AIMS OVER TIME FOR USER DRIVER LEARNING IN BOTANY
      6. CONVERSATIONAL PROCESS OF USER DRIVER LEARNING IN BOTANY
      7. IMPLEMENTING NEW IDEAS FOR USER DRIVER LEARNING IN BOTANY
      8. MEASURING PERFORMANCE/ SUCCESS OF USER DRIVEN LEARNING IN BOTANY
      9. MANAGING CONFLICTS AND SENSE MAKING FROM MULTIPLE INPUTS DURING USER DRIVER LEARNING IN BOTANY
      10. LIMITATIONS/ STRENGTHS OF USER DRIVER LEARNING IN BOTANY
      11. REQUIREMENTS FOR SUCCESS OF USER DRIVEN LEARNING IN BOTANY
      12. FUTURE DIRECTIONS
      13. CONCLUSION
    4. Chapter 20: Online Learning in Discussion Groups
      1. Abstract
      2. INTRODUCTION:
      3. SENSE-MAKING METHODOLOGY:
      4. METHOD
      5. RESULTS
      6. CONCLUSION
    5. Chapter 21: Unlearning and Relearning in Online Health Education
      1. Abstract
      2. INTRODUCTION
      3. THE INTERNET AND THE WORLD WIDE WEB
      4. ONLINE COLLABORATIVE LEARNING FOR USER DRIVEN HEALTHCARE
      5. FUTURE PROSPECTS
    6. Chapter 22: Developing Community Ontologies in User Driven Healthcare
      1. Abstract
      2. INTRODUCTION
      3. BACKGROUND
      4. DEVELOPING USER ONTOLOGIES
      5. DEVELOPING ONTOLOGIES WITHIN AN EMPOWERMENT RESEARCH APPROACH
      6. UNCOVERING AND MEDIATING TRADITIONAL BELIEFS
      7. SORCERY:
      8. APPRECIATING AND CHALLENGING TABOO’S
      9. EXTENDING SHARED UNDERSTANDINGS TO THE VILLAGE COMMUNITY
      10. IMPACT OF SHARING KNOWLEDGE AND DEVELOPING NETWORKS
      11. ISSUES CONTROVERSIES PROBLEMS
      12. INTERNATIONAL TO CONTEXT SPECIFIC AGENDAS: CONTROLLED VERSUS REAL WORLD APPLICATION
      13. SOLUTIONS IN THE WIDER HEALTH CONTEXT
      14. CONCLUSION
    7. Chapter 23: Psychiatric Illness and Personal Narrative
      1. Abstract
      2. INTRODUCTION
      3. CONCLUSION
    8. Chapter 24: The Gap between What is Knowable and What We Do in Clinical Practice
      1. Abstract
      2. INTRODUCTION
      3. METHOD
      4. RESULTS
      5. REFLECTIONS ON THE STUDY DESIGN
      6. ACKNOWLEDGMENT
    9. Chapter 25: Healthcare Narratives and Self-Care Stories
      1. Abstract
      2. INTRODUCTION
      3. BACKGROUND
      4. METHOD
      5. RESULTS & ANALYSIS
      6. LIMITATIONS OF THE RESEARCH AND FUTURE DIRECTIONS
      7. CONCLUSION
    10. Chapter 26: Patients with a Spinal Cord Injury Inform and Co-Construct Services at a Spinal Cord Rehabilitation Unit
      1. Abstract
      2. INTRODUCTION
      3. BACKGROUND
      4. COLLABORATIVE AND CARING RELATIONSHIPS BETWEEN HEALTH PROFESSIONALS, PATIENTS AND THEIR FAMILIES
      5. SOLUTIONS AND RECOMMENDATIONS
      6. FUTURE RESEARCH DIRECTIONS
      7. CONCLUSION
    11. Chapter 27: Social Construction of Chronic Disease
      1. Abstract
      2. Narrative analysis
      3. Method
      4. Issues derived from patient/practitioner accounts
      5. Diagnosis and treatment: Importance of the medical practitioners in patients’ experiences of non-legitimated illnesses
      6. Perspective of chronic illness patients and knowledge of diseases.
      7. Reflections on chronic illness
      8. Conclusion
    12. Chapter 28: Dimensions of the Patient Journey
      1. Abstract
      2. INTRODUCTION
      3. MEDICAL PATIENTJOURNEY CONCEPTS
      4. User-driven patient journey concept
      5. Patient as life-explorer
      6. The creation of a personal journey support system
      7. Background history
      8. Development of a preliminary prototype
      9. The Iconosphere
      10. The Body, the Home and Cyberspace in the Diary
      11. The Personal Interface
      12. Ongoing prototyping
      13. Anticipating the expectable
      14. Interfacing the most trusted helper
      15. CONCLUSION
      16. Appendix A. Implemented features in the diary
      17. Appendix B: Desired further features of the diary
    13. Chapter 29: Integrating Medical Education with Medical Practice
      1. Abstract
      2. Introduction
      3. From learning theories to social networking technologies
      4. Social networking technologies in medical education and training
      5. Summary
    14. Chapter 30: Ubiquitous Information Therapy Service through Social Networking Libraries
      1. Abstract
      2. Introduction
      3. Current situation of health information library services and vision of Web 2.0 based health information services
      4. Objectives of the study
      5. What is information therapy?
      6. Patients' preference in accessing health information
      7. How the Web 2.0 applications can be utilized for rendering Information Therapy Service by the libraries/ librarians?
      8. Power of information in therapy through collaboration /relation between physicians, patients, librarians (information professionals)
      9. Social Networking Library (SNL) System for Information Therapy (Ix)
      10. Schematic Design
      11. Information Therapy Service through Web 2.0 Social Networking Library Systems
      12. Conclusion
    15. Chapter 31: Bridging Online and Offline Social Networks to Promote Health Innovation
      1. Abstract
      2. Introduction
      3. Transforming Knowledge into Action
      4. The CoNEKTR Model
      5. Implementing the CoNEKTR model in practice
      6. Conclusion
    16. Chapter 32: Emerging Trends in User-Driven Healthcare
      1. Abstract
      2. Market relations at a glance
      3. Dynamics of a Health 2.0 Formation in Healthcare
      4. Implications on Healthcare Market
    17. Chapter 33: Global Health Google
      1. Abstract
      2. Introduction
      3. Page Ranks
      4. Google Trends
      5. Methods
      6. Global Health Google, Temporal trends and the Decline of e-BMJ
      7. Discussion: Summary and Importance of This Research
    18. Chapter 34: Testing the Waters
      1. ABSTRACT
      2. Introduction
      3. The Naasautit: Inuit Health Statistics Project – Bringing the Numbers Home
      4. The Inuit Population in Canada
      5. Inuit Lands – Nunangat
      6. Using Health Statistics in Inuit Regions and Communities
      7. “Introduction to Statistical Techniques” Comes to Nain
      8. User Testing Design and Rationale
      9. Why We Used Community Accounts to Test Interest in Community-Level Statistics
      10. The Nain Focus Group
      11. The Health Statistics Warm-up Exercise
      12. Community Accounts Testing
      13. Findings
      14. How Would You Describe Nain as a Place to Live?
      15. How Participants Found Nain Portrayed in the Community Profile
      16. Selecting Statistics
      17. Reliability and Validity of Community Accounts Statistics
      18. Reflecting on Comparing Communities
      19. Summary of Findings from the Nain Focus Testing
      20. Planning Implications
      21. The “Numbers” and their Effect on Community Mobilization
      22. Gathering the Statistics that Matter to Inuit
      23. Conclusion
  10. Compilation of References
  11. About the Contributors
  12. Afterword
    1. Abstract
    2. Introduction
    3. Knowledge
    4. The Semantics of Health, illness and disease (the subjective) versus pathology (the objective)
    5. Health: a dynamically changing state
    6. The user-driven approach regarding information, knowledge and wisdom
    7. Can user-driven health care be the catalyst for true health systems reform?
    8. Summary
  13. Index