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Psychosocial Studies of the Individual's Changing Perspectives in Alzheimer's Disease

Book Description

Cognitive impairment, through Alzheimer’s disease or other related forms of dementia, is a serious concern for afflicted individuals and their caregivers. Understanding patients’ mental state and combatting social stigmas are important considerations in caring for cognitively impaired individuals. Psychosocial Studies of the Individual's Changing Perspectives in Alzheimer's Disease describes programs and strategies that professional and family caregivers can implement to engage and improve the quality of life of persons suffering from cognitive impairment. Including real-world cases by international experts and a personal approach to the subject, this book is an important resource for caregivers, researchers, and families living with dementia.

Table of Contents

  1. Cover
  2. Title Page
  3. Copyright Page
  4. Book Series
    1. Mission
    2. Coverage
  5. Editorial Advisory Board and List of Reviewers
    1. Editorial Advisory Board
  6. Foreword
  7. Preface
    1. A HUMAN DISEASE
    2. PSYCHOSOCIAL STUDIES
    3. PHENOMENOLOGY OF DEMENTIA
    4. RESEARCH METHODS
    5. CHAPTER ORGANIZATION
  8. Acknowledgment
  9. Section 1: Foundations
    1. Chapter 1: Listening to Alzheimer's
      1. ABSTRACT
      2. INTRODUCTION
      3. BACKGROUND
      4. THE ROLE OF SOCIAL LOCATION
      5. SOLUTIONS AND RECOMMENDATIONS
      6. FUTURE RESEARCH DIRECTIONS
      7. CONCLUSION
      8. ACKNOWLEDGMENT
      9. REFERENCES
      10. KEY TERMS AND DEFINITIONS
    2. Chapter 2: Steve's Story
      1. ABSTRACT
      2. INTRODUCTION
      3. STEVE’S STORY: THE TRANSCRIBED AUDIO-RECORDINGS
      4. STEVE’S STORY: THE INTERVIEW
      5. DISCUSSION
      6. ACKNOWLEDGMENT AND RESISTANCE
      7. LIMITATIONS
      8. CONCLUSION
      9. REFERENCES
      10. KEY TERMS AND DEFINITIONS
    3. Chapter 3: Cognitive Decline and the Changing Self in Relationship
      1. ABSTRACT
      2. INTRODUCTION
      3. THEORETICAL PERSPECTIVES
      4. SAMPLE AND APPROACH
      5. METHODOLOGY
      6. QUALITATIVE PHENOMENOLOGICAL RESULTS
      7. DISCUSSION
      8. ACKNOWLEDGMENT
      9. REFERENCES
      10. KEY TERMS AND DEFINITIONS
    4. Chapter 4: Taking Care to Play
      1. ABSTRACT
      2. INTRODUCTION
      3. RESEARCH METHODS AND AIMS
      4. BACKGROUND
      5. ETHNOGRAPHIC EXPLORATION
      6. RESEARCH DIRECTIONS: PRESENT AND FUTURE
      7. CONCLUSION
      8. ACKNOWLEDGMENT
      9. REFERENCES
      10. ADDITIONAL READING
      11. KEY TERMS AND DEFINITIONS
    5. Chapter 5: Dementia and Other Neurocognitive Disorders
      1. ABSTRACT
      2. INTRODUCTION
      3. BACKGROUND
      4. DEMENTIA AND ITS SYMPTOMS
      5. MILD COGNITIVE IMPAIRMENT
      6. ALZHEIMER’S DISEASE
      7. RECENT ADVANCES AND FUTURE RESEARCH DIRECTIONS
      8. MANAGEMENT
      9. CONCLUSION
      10. ACKNOWLEDGMENT
      11. REFERENCES
      12. KEY TERMS AND DEFINITIONS
  10. Section 2: Awareness and Identity
    1. Chapter 6: Awareness, Self, and the Experience of Dementia
      1. ABSTRACT
      2. INTRODUCTION
      3. BACKGROUND
      4. EARLY-STAGE DEMENTIA
      5. MODERATE-TO-SEVERE DEMENTIA
      6. SUPPORTING RETAINED AWARENESS AND SENSE OF SELF
      7. SUMMARY AND CONCLUSION
      8. REFERENCES
      9. KEY TERMS AND DEFINITIONS
    2. Chapter 7: Stable Self-Concepts and Flexible Coping Strategies of People with Dementia Attending Dementia Self-Help Groups in Germany
      1. ABSTRACT
      2. INTRODUCTION
      3. SELF-EXPRESSIONS OF PEOPLE WITH DEMENTIA: RESULTS FROM A SYSTEMATIC REVIEW OF THE LITERATURE
      4. THEORETICAL FRAMEWORK OF THE SEIN STUDY
      5. OBJECTIVES AND RESEARCH INTEREST OF THE SEIN STUDY
      6. METHODS
      7. RESULTS
      8. FUTURE RESEARCH DIRECTIONS
      9. CONCLUSION
      10. REFERENCES
      11. KEY TERMS AND DEFINITIONS
    3. Chapter 8: Self-Preservation in Individuals with Alzheimer's Disease
      1. ABSTRACT
      2. INTRODUCTION
      3. EVIDENCE FROM LANGUAGE AND VISUAL RECOGNITION: A REVIEW AND SUMMARY OF OUR PREVIOUS WORK
      4. LANGUAGE USAGE BY LEVEL OF IMPAIRMENT AND SETTING: NEW ANALYSES
      5. CURRENT RESEARCH ON SELF AND AD
      6. SOCIAL POSITIONING AND THE MAINTENANCE OF SELF
      7. CONCLUSION: IMPLICATIONS FOR RESEARCH AND CARE
      8. REFERENCES
      9. KEY TERMS AND DEFINITIONS
    4. Chapter 9: Art, Drawing Task Processes, and Identity Awareness
      1. ABSTRACT
      2. INTRODUCTION
      3. METHODOLOGY
      4. SAMPLE
      5. PROCEDURE
      6. RESULTS
      7. DISCUSSION
      8. FUTURE RESEARCH DIRECTIONS
      9. CONCLUSION
      10. ACKNOWLEDGMENT
      11. REFERENCES
      12. ADDITIONAL READING
      13. KEY TERMS AND DEFINITIONS
  11. Section 3: Practice
    1. Chapter 10: Spiritual Factors in the Experience of Alzheimer's Disease and Other Dementias
      1. ABSTRACT
      2. INTRODUCTION
      3. BACKGROUND
      4. SPIRITUAL REMINISCENCE STUDY
      5. CONCLUSION
      6. REFERENCES
      7. KEY TERMS AND DEFINITIONS
    2. Chapter 11: Disease Awareness, Cognitive Decline, and Communication in Persons with Mild Cognitive Impairment and Caregivers
      1. ABSTRACT
      2. INTRODUCTION
      3. BACKGROUND
      4. DISCUSSION AND RECOMMENDATIONS
      5. FUTURE RESEARCH DIRECTIONS
      6. REFERENCES
      7. KEY TERMS AND DEFINITIONS
    3. Chapter 12: Changing Perception in Alzheimer's
      1. ABSTRACT
      2. INTRODUCTION
      3. BACKGROUND
      4. CREATING AN ALTERNATE PARADIGM: THE EXPERIENTIAL MODEL
      5. EXPERIENTIAL INSIGHTS ON CHANGING PERSPECTIVES IN DEMENTIA
      6. AN EXPERIENTIAL APPROACH TO DECODING DISTRESS
      7. FUTURE REASEARCH DIRECTIONS
      8. CONCLUSION
      9. ACKNOWLEDGMENT
      10. REFERENCES
      11. KEY TERMS AND DEFINITIONS
  12. Section 4: Daily Life
    1. Chapter 13: Fragmented Existence
      1. ABSTRACT
      2. INTRODUCTION
      3. BACKGROUND
      4. EXPERIENCES OF LIVING ALONE WITH DEMENTIA AND A MANIFEST CARE NEED
      5. LIVING WITH IMPARED INTENTIONALITY
      6. DISCUSSION
      7. CONCLUSION
      8. REFERENCES
      9. KEY TERMS AND DEFINITIONS
    2. Chapter 14: The Impact of Decline on Everyday Life in Alzheimer's Disease
      1. ABSTRACT
      2. INTRODUCTION
      3. BACKGROUND
      4. THE RELATIONSHIP BETWEEN COGNITION AND EVERYDAY FUNCTION
      5. THE IMPACT OF EMOTIONS AND BEHAVIOR ON EVERYDAY FUNCTION
      6. ASSESSMENT OF EVERYDAY FUNCTIONING
      7. PSYCHOSOCIAL CONSEQUENCES OF FUNCTIONAL DECLINE IN AD
      8. CONCLUSION
      9. REFERENCES
      10. KEY TERMS AND DEFINITIONS
    3. Chapter 15: The Sleep-Wake System and Alzheimer's Disease
      1. ABSTRACT
      2. INTRODUCTION
      3. METHODS
      4. BACKGROUND
      5. SLEEP-WAKE IN ALZHEIMER’S DISEASE
      6. SLEEP DISORDERS ASSOCIATED WITH AD AND OTHER DEMENTIAS
      7. MANAGEMENT AND TREATMENT OF SLEEP-WAKE DISORDERS IN PERSONS WITH AD
      8. FUTURE RESEARCH DIRECTIONS
      9. CONCLUSION
      10. ACKNOWLEDGMENT
      11. REFERENCES
      12. KEY TERMS AND DEFINITIONS
  13. Compilation of References
  14. About the Contributors