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Protecting the Genetic Self from Biometric Threats

Book Description

Privacy is a fundamental concern of all individuals in the modern information-driven society, but information security goes beyond digital and data-oriented approaches to include the basic components of what makes us human. Protecting the Genetic Self from Biometric Threats: Autonomy, Identity, and Genetic Privacy considers all aspects of privacy and security relating to an individual’s DNA. With a concentration on fundamental human rights as well as specific cases and examples, this essential reference brings pertinent, real-world information to researchers, scientists, and advocates for greater security and privacy in the modern world.

Table of Contents

  1. Cover
  2. Title Page
  3. Copyright Page
  4. Editorial Advisory Board and List of Reviewers
    1. Editorial Advisory Board
  5. Preface
    1. THE GENETIC SELF: AUTONOMY, IDENTITY, AND GENETIC PRIVACY IN THE ERA OF TECHNOLOGY
  6. Section 1: Privacy, Autonomy, and Identity of the Individual in the Era of Globalization
    1. Chapter 1: Privacy as a Right
      1. ABSTRACT
      2. INTRODUCTION
      3. PRIVACY AS A RIGHT
      4. THE HISTORY OF PRIVACY
      5. THE INTERNATIONAL RECOGNITION OF PRIVACY AND PROTECTION
      6. THE CONNECTION BETWEEN PRIVACY, AUTONOMY, AND THE IDENTITY OF AN INDIVIDUAL
      7. CONCLUSION
      8. REFERENCES
      9. KEY TERMS AND DEFINITIONS
    2. Chapter 2: Substantial Equality and Human Dignity
      1. ABSTRACT
      2. INTRODUCTION
      3. THE CONCEPT OF HUMAN DIGNITY AND ITS VARIOUS CONCEPTS
      4. THE CONTRIBUTION OF THE PRINCIPLE OF HUMAN DIGNITY TO THE INTERPRETATION OF THE RIGHT TO EQUALITY
      5. CONCLUSION
      6. REFERENCES
      7. KEY TERMS AND DEFINITIONS
      8. APPENDIX: INTERNATIONAL CONVENTIONS AND LEGAL SOURCES
  7. Section 2: Privacy, Sexual Autonomy, and Sexual Orientation: Threats and Limits
    1. Chapter 3: Sexual Orientation, Female Genital Mutilation, and Health in Asylum Cases
      1. ABSTRACT
      2. 1. INTRODUCTION
      3. 2. THE LEGAL FRAMEWORK REGARDING ASYLUM CASES OF SEXUAL ORIENTATION
      4. 3. NATIONAL AND INTERNATIONAL JURISPRUDENCE ON ASYLUM CASES OF SEXUAL ORIENTATION
      5. 4. THE PROBLEMATIC OF FEMALE GENITAL MUTILATION REGARDING THE ACKNOWLEDGMENT OF REFUGEE STATUS
      6. 5. HEALTH AS A BORDERLINE CASE OF GRANTING INTERNATIONAL PROTECTION
      7. 6. EctHR JURISPRUDENCE ON HEALTH ISSUES IN THE CONTEXT OF REFUGEE PROTECTION
      8. 7. CONCLUSION
      9. REFERENCES
      10. KEY TERMS AND DEFINITIONS
    2. Chapter 4: Refugee Claims Based on Persecution Due to Sexual Orientation before the Court of Justice of the European Union
      1. ABSTRACT
      2. 1. INTRODUCTION
      3. 2. THE COURT’S JUDGMENT
      4. 3. SOME CRITICAL REMARKS
      5. 4. CONCLUSION
      6. REFERENCES
      7. KEY TERMS AND DEFINITIONS
    3. Chapter 5: Sexual Orientation as a Human Right
      1. ABSTRACT
      2. 1. FACTS OF THE CASE
      3. 2. RIGHT TO SEXUAL ORIENTATION
      4. 3. SOCIAL CONSTRUCTIONISM AND WESTERN SOCIETIES
      5. 4. LAW AND SEXUAL ORIENTATION
      6. 5. CONCLUSION
      7. REFERENCES
      8. KEY TERMS AND DEFINITIONS
    4. Chapter 6: Domination, Asylum, and Sexual Orientation
      1. ABSTRACT
      2. INTRODUCTION
      3. ASYLUM AND SEXUAL ORIENTATION
      4. THE “CULTURE OF DISBELIEF”
      5. RECEPTION CENTERS OR HOSTING IMMIGRANTS
      6. CONCLUSION
      7. REFERENCES
      8. KEY TERMS AND DEFINITIONS
    5. Chapter 7: Case of Vallianatos and Others v. Greece
      1. ABSTRACT
      2. INTRODUCTION
      3. 1. THE CASE
      4. 2. THE APPLICATION OF PARTNERSHIP TO SAME-SEX RELATIONSHIPS
      5. 3. CONCLUSION
      6. REFERENCES
      7. KEY TERMS AND DEFINITIONS
      8. APPENDIX: JURISPRUDENCE
  8. Section 3: Autonomy, the Abortion Controversy, and the Ethics of Sterilization
    1. Chapter 8: Abortion
      1. ABSTRACT
      2. 1. INTRODUCTION
      3. 2. A BRIEF LEGAL HISTORY OF ABORTIONS
      4. 3. ON LIFE AND THE HUMAN DIGNITY OF THE UNBORN
      5. 4. IMPORTANT CASE-LAW LANDMARKS
      6. 5. THE GREEK LEGISLATIVE CHOICE
      7. 6. IN LIEU OF AN EPILOGUE
      8. REFERENCES
      9. KEY TERMS AND DEFINITIONS
      10. ENDNOTES
    2. Chapter 9: Sterilization of Women
      1. ABSTRACT
      2. STERILIZATION AS A STATE POLICY FOR TACKLING POVERTY AND CONTROLLING THE SIZE AND ‘QUALITY’ OF POPULATION
      3. STERILIZATIONS AND PUBLIC HEALTH: HIV POSITIVE WOMEN
      4. STERILIZATION AND THE PROTECTION OF VULNERABLE GROUPS: STERILIZATION OF WOMEN WITH DISABILITIES AND THE INTERNATIONAL PROTECTION FRAMEWORK
      5. THE INTERNATIONAL FRAMEWORK FOR THE PROTECTION OF WOMEN WITH DISABILITIES FROM INVOLUNTARY AND FORCED STERILIZATIONS
      6. THE LIMITS OF COERCIVE AND UNINTENDED STERILIZATIONS FROM THE STANDPOINT OF MEDICAL ETHICS
      7. CASE STUDY: FORCED STERILIZATIONS OF ROMA WOMEN AND THE JURISPRUDENCE OF ECHR.
      8. CONCLUSION
      9. REFERENCES
      10. KEY WORDS AND DEFINITIONS
    3. Chapter 10: Abortion and the Right to Life in the International Bibliography
      1. ABSTRACT
      2. INTRODUCTION
      3. DEFINITION
      4. TYPES OF ABORTION
      5. FACTORS LEADING TO ABORTION
      6. SOCIETY’S VIEW ON ABORTION
      7. ABORTION LAW
      8. CONCLUSION
      9. REFERENCES
      10. KEY TERMS AND DEFINITIONS
      11. APPENDIX
    4. Chapter 11: The Conservatism of the European Court of Humans Rights Regarding Abortions on Demand
      1. ABSTRACT
      2. INTRODUCTION
      3. RECOGNIZING THE RIGHT TO ABORTION?
      4. THE RIGHT TO LIFE AND TO PRIVACY
      5. DOMINATION, NATIONALISM, RELIGION, AND ABORTIONS
      6. CONCLUSION
      7. REFERENCES
      8. KEY TERMS AND DEFINITIONS
  9. Section 4: Genetic Privacy, Biometrics, and Dignity
    1. Chapter 12: Genetic Privacy
      1. ABSTRACT
      2. INTRODUCTION
      3. NEED FOR GENETIC PRIVACY PROTECTION
      4. THE STATE OF GENETIC PRIVACY IN SCIENTIFIC RESEARCH
      5. ACKNOWLEDGMENT
      6. REFERENCES
      7. KEY TERMS AND DEFINITIONS
    2. Chapter 13: Remarks and Considerations on the CJEU Decision on Biometric Passports
      1. ABSTRACT
      2. INTRODUCTION
      3. THE RIGHT TO THE PROTECTION OF PERSONAL DATA AND THE PROPORTIONALITY PRINCIPLE AS A LIMITATION OF THE INFRINGEMENT
      4. THE PRINCIPLE OF PROPORTIONALITY IN THE PROCESSING OF BIOMETRIC DATA
      5. BIOMETRICS IN PASSPORTS: THE ASSESSMENT OF PROPORTIONALITY IN THE C-291/12 CASE
      6. CONCLUSION
      7. REFERENCES
      8. KEY TERMS AND DEFINITIONS
    3. Chapter 14: Hunting HIV-Positive Women in Greece as Parasites
      1. ABSTRACT
      2. INTRODUCTION
      3. THE PERSECUTION OF HIV-POSITIVE WOMEN
      4. THE VIOLATION OF THE RIGHT TO PRIVACY OF HIV-POSITIVE WOMEN
      5. HIV-POSITIVE PEOPLE AND DISCRIMINATION
      6. THE PROTECTION OF PERSONAL DATA IN AN EU’S FRAMEWORK
      7. GENDER, DOMINATION, AND MARGINALIZATION
      8. CONCLUSION
      9. REFERENCES
      10. KEY TERMS AND DEFINITIONS
    4. Chapter 15: Privacy Nudges
      1. ABSTRACT
      2. INTRODUCTION
      3. IRRATIONAL BEHAVIOR
      4. EXPLANATION
      5. CORRECTING THE SHORTCOMINGS
      6. PATHS FOR FUTURE RESEARCH
      7. REFERENCES
      8. KEY TERMS AND DEFINITIONS
  10. Compilation of References
  11. About the Contributors