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No Map to This Country: One Family's Journey through Autism by Jennifer Noonan

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Chapter 20

The SCD Lady

AS THE SCHOOL year drew to a close, we began to acknowledge that my fears about poststeroid regression had been justified. Again and again Paul lost skills, speech, and behavioral control within days when we tried to wean him off the steroids, and we’d hurriedly start him on another round. On the steroids, he was a completely normal kid. Off them, it wasn’t working, and the urgency to find a permanent solution grew even as the cold realization was sinking in that our visa to Italy might be temporary.

We tried transitioning him to one of the long-term options Dr. Krigsman had mentioned in the beginning, namely, an immune ...

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