I didn’t know what was going on in my body.
I just felt like a lot of weird things were going on that I couldn’t explain.
It was kind of like a free fall where you feel like a kid who isn’t understood, isn’t heard.
I was confused, scared, didn’t know where to turn. So I decided just to wait it out.
—Richard, focus group participant
Whenever the hospice people would come to visit, I’d turn off the television, wheel Dad into the kitchen, and wait until they left. I figured as long as they didn’t come through that door, we were safe.
—Kim, focus group participant
My great-grandfather, whom I called Grandpa, had a great life and a perfect ending.
Grandpa emigrated from Germany in his early ...